Monday, May 10, 2021

Kameron Treatment Update

We were disappointed to learn, after many weeks of effort, that the University of Texas MD Anderson will NOT be seeing Kameron for a second opinion for his osteosarcoma. Long story short, after lots of calls back and forth to the insurance company, (MD Anderson) Houston, and our doctors offices-- we found out our insurance will not approve us for in-network benefits. Their reasoning was that Kameron can be seen at a more local (in-network) cancer center-- Huntsman Cancer Center in Salt Lake City, Utah. To say I am frustrated about this development, is putting it mildly. After hours of our own research, MD Anderson is nationally ranked #1 in treatment for osteosarcoma with the best rates of a cure. This has been a tough blow for us to accept. 

We are now pursuing a second opinion in Utah. We are tired. And we are having to start over in the referral process with a new hospital. Please be in prayer that this can be facilitated quickly.

As far as we understand right now, Kameron will undergo additional rounds of chemotherapy each week for the next 2-3 weeks. He'll be hospitalized for 3-4 days at a time (each week) as the oncology team administers a 3rd kind of chemotherapy medication. Kameron graduates from high school later this month. We are excited for him and his accomplishments, and also nervous as COVID restrictions relax around us, because selfishly those protect Kameron from potential exposure to possible infections (ie: colds, etc).  He'll be at the height of his treatment and most at risk when he walks for graduation.  

Kameron's hair is falling out. His white blood cells that help fight infections are at a critical low, due to the chemotherapy. That means he can catch infections much more easily than usual. And any slight fever will send him to the ER. However, his spirits remain good and his resolve to kick cancer's butt remains unwavering. He has the same sharp wit and good humor. 

Thank you to those who've mailed us notes of encouragement, ding-dong ditched donuts at the door, taken the younger boys to play with friends or assisted with childcare, sent money for Kam snacks, brought him Chinese food, etc. It has meant a lot to us. It has taken a village. <3<3<3


4 comments:

  1. It will continue to take a village. I sense weariness in this update, and understandably so. Please take heart, get your rest and let those who love you carry you.
    I’m holding you close to my heart ♥️

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  2. Praying he gets the best treatment available anyway. Asking God to work through his current doctors

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  3. Still prayin for all of you. For Healing for Kameron and peace for the family in the midst of this storm.

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  4. Will continue to pray for all of you.

    Lillena

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