Friday, July 30, 2021

The Tumors Out. Now what?

Kam has continued to do really well after his surgery to remove the tumor. His pain has been controlled the entire time with simple Tylenol and prescription anti-inflammatories. He has needed no pain medications otherwise! He is doing more and more each day and has nearly put all of his pre-chemotherapy weight back on. He has been sassy, eating better, and is mischievous as ever! It's so nice seeing him feeling better.

He meets with his surgeon again early next week. They'll remove the dressing, that acts as a wound vac, to keep the wound clean and closed. His surgeon has really gone above and beyond to ensure Kameron has a good outcome and to minimize his risk of any potential complications. We could not be more grateful for his expertise, attention to detail, and his willingness to go above and beyond for our boy! Each day Kameron is able to walk a bit more with his walker. He still cannot bend his knee yet, is in a straight leg splint, and he isn't to put more than just slight weight on his surgical leg. 

We met with Kameron's oncologist yesterday. His case was discussed at tumor board and they all felt that his small 5 lung nodules were of low likelihood to be osteosarcoma. They also confirmed they (the nodules) are indeed there, that they are stable since April, and they are something to be watched closely for any changes given Kameron's type of cancer. The thoracic surgeons recommended not to "go after them" as it is likely difficult to reach (at best), and the plan is for regular chest CT's to monitor for any changes.

We also discussed his post-operative chemotherapy plan. He is likely to re-start chemo late the second week of August. He has 18 more weeks of chemotherapy ahead of him. The first 10 weeks look identical to the previous 10 weeks. Then the last 8 weeks of treatment he loses one of the chemotherapy medications, but he only gets one week breaks (twice) the entire time (more grueling, less recoup time). Until-- the finish line. 

All of this is pending his surgeon's approval to proceed with treatment, Kameron making counts to proceed with chemotherapy treatments, and that Kam stays without complications. If all goes as planned, he would be done after the first week of December with treatment.

We ask for good thoughts and prayers for continued and uneventful healing of Kameron's leg. For his social security disability request to go through. And for us helping Kam fight this fight. This has been a long grueling fight. We battle on. 

2 comments:

  1. Such a great news. It sounds like he is going in the right direction. We will continue to pray for him and his recovery. Hugs! Take deep breaths and trust G-d. HE is in control

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