Sunday, August 15, 2021

First Round of Post Surgery Chemotherapy

This past Tuesday, Kameron was re-admitted to the hospital to begin his 18 weeks of post-surgery chemotherapy for his osteosarcoma. He has since ben discharged back home. He is making excellent progress with physical therapy with his right knee range of motion, and his pain has remained minimal! He takes his Celebrex only for his pain. He has picked up an interest in really cool cars (ex: McClellan, Bugatti, Ferrari, Porsche). He bought himself his dream car Bugatti Lego. And as a celebration of his recent amazing pathology report results-- we got him a Porsche Lego which he finished putting together before his most recent hospitalization.

This round of chemotherapy has been more difficult and harder on his body. He has been sicker. We believe one of the medications that had helped minimize this for him, was helping him far more than we had realized. Unfortunately, this is the same medication that led to his fall and low blood pressure while previously in the hospital. Side effects have been a hard and mucky part of this journey to navigate.  

Because Kameron has been sicker, it's harder to inspire and encourage him to eat and drink. Basically, our mantra has been "what doesn't sound horrible?" During chemo treatments, we've all had to shift our frame of mind from what sounds good, to what sounds like you might be able to keep it down? Sometimes the answer is mom's special snacks (the one's I usually would share with NO ONE). Sometimes it's ice cream on a giant brownie from Stella's. Basically, so long as he is eating, it doesn't matter. He is eating.

We did receive some good news from the hospital's social worker that Kameron has tentatively been approved for disability. What this exactly means for him, we don't know yet. We do know that we have additional paperwork to complete and that we will have more financial assistance with Kameron's medical bills. Which is a HUGE blessing!

Kameron gets to have a couple week break from treatment and then resumes an intense 3 weeks of back to back weekly chemotherapy treatments and hospitalizations before his next break.   

Please continue to pray for our family as we've been hit hard with even more stressors lately. School is starting soon for our younger three in the coming week or so (and they're all super excited). Navigating last minute back to school shopping items that come up, various doctor's appointments for all the kiddos, and a grueling chemotherapy regimen for Kam while mom also works full time-- is no joke. Let alone the ability to make time for self care in this season. (We are doing our best).

Thank you to our tribe. Those who continue to hold us up in prayer/love/thought, through words of affirmation, encouragement and in acts of service. We thank God daily for you. We often get told "we have no idea how you're doing this." It's Jesus. And it's God showing up through our people like you. Holding our arms up when we just cannot do it anymore. It's showing up in your various acts of love and support. You're proof that it takes a village. And we are so very grateful for our tribe. 💖💖💖

2 comments:

  1. Great to hear good news! Jacob loves those LEGOS. Is he able to control them and move them around with an app? Which one is he missing from his list? Let me know.
    Stay sane Mom and Dad 💗

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    1. The Porsche, no. But I believe yes with the Bugatti. Those are the only two he currently has.

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